Stats from V&L’s 15-month appointment this morning:
Weight: 22 lbs 5.1 oz (40th %)
Length: 29.5 inches (21st %)
Head Circumference: 19 inches (98th %)
Weight: 22 lbs 3.2 oz (38th %)
Length: 30 inches (35th %)
Head Circumference: 18.5 inches (87th %)
Apparently they have some big heads! Must mean they are really smart. : )
They received two vaccines today, and they were understandably not happy about that. They have upper respiratory infections, so they were already not thrilled in general. I had to wake them up early to be on time for the appointment, so they started the day a little grouchy. I crept into their room and watched them sleep for several minutes before waking them up… sleeping babies are so angelic! When I have to wake them up early, they have drastically different reactions… Violet stands right up and starts jumping up and down in her crib with a big smile and some giggles (much like my husband, who is a morning person), whereas Layla usually wakes up and starts crying (much like me, a grumbling grump for the first few minutes of the day).
Because we can never go to the pediatrician without some type of new diagnosis, the doctor today diagnosed Layla with KP (Keratosis pilaris). It’s basically a minor skin condition that causes little red bumps to appear on the backs of her arms. She already has eczema, so we had been applying tons of lotion to the backs of her arms, thinking that it was just a particularly dry spot. But when I actually took time to examine the backs of her arms last night, I noticed that it was actually a rashy-looking patch of skin. It doesn’t seem to bother her, but they recommended that we put cream on it twice a day.
This is gross, but maybe good information for a parent in the same situation… I also asked today about a rather large skin tag that Layla now has in the crack of her bottom. I never noticed it until her ER visit for her anal fissure, and I didn’t know if having a skin tag in that vicinity of her body would have any negative implications. The doctor said it’s common after a fissure or after a bad bout of constipation, and that it’s nothing to worry about. Good to know!
I’m surprised at how similar their weight is to each other. They have different body types… Layla’s legs are longer, Violet has adorable thunder thighs, Layla has a narrow bottom and Violet’s is a little rounder. Violet was nearly 2 lbs heavier than Layla at birth, so it’s amazing to see how Layla has thrived and caught up.
Thankful that they are doing so well and that we can mark yet another medical appointment off the list. The next well child visit is at 18 months in March. They are getting some serious medical environment anxiety (Layla started crying the minute we entered the exam room, before anyone had even paid any attention to her), but we are dealing with it. There isn’t much I can do about it, but I feel terrible seeing them cry like they did today. In one year, they have had the following medical interventions:
- Eight broken bones between the two of them (plus a few false alarms that resulted in an ER visit)
- Eight Pamidronate IV infusions
- 10 or so pediatrician visits
- Casts for clubfoot treatment
- Double-tenotomy surgery for clubfoot treatment
- Fittings for two braces for clubfoot treatment
- OI clinic
- Exams and CT scan for craniosynostosis
- Complete skull and frontal orbital advancement reconstructive surgery for craniosynostosis
- Two craniofacial clinic days and evaluations
- Exams for hearing concerns and plans for tube placement
- Tubes placed in ears
- ER visit for anal fissure
- Tons of PT and speech therapy since February
I’m sure I’m leaving some stuff out, but that’s a lot of medical appointments all by itself. Even when the medical issue applied only to one child, I had to take both of them most of the time because my husband obviously had to work. The unaffected child sitting in the stroller still felt the anxiety and stress of her twin, I believe, and learned to associate medical environments with the crying that ensued. I’m sad for them… I wish they hadn’t had to deal with any of this, but their OI had to be addressed, Violet’s clubfeet and craniosynostosis had to be addressed. Broken bones had to be x-rayed, vaccines had to be given. I tell myself that they are lucky, that many other babies deal with so much more, but I don’t want to invalidate their feelings. They don’t understand why they have to hurt, why they have to get poked and prodded, and their feelings are justified. It’s just a shame that they are now so fearful of these appointments. And I’m sure as they grow older and more aware, it’s going to get worse! Blah! : )
Next up: Milestones update!